tag:blogger.com,1999:blog-4122412036326078914.post1619864928557250092..comments2023-10-25T07:57:28.218-04:00Comments on Still Alice: It's All In How You Hold ItLisa Genovahttp://www.blogger.com/profile/03341881302531610864noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-4122412036326078914.post-69741658587533392102011-05-18T18:15:03.323-04:002011-05-18T18:15:03.323-04:00Lisa! Thanks for this! Very much my experience w...Lisa! Thanks for this! Very much my experience with my father's Alzheimer's too... However, in his case, because of the already advanced state of his disease etc, I did the meditating for him. Such is the life of a clairvoyant, I suppose! ;)<br />My blog on our experiences working through Alzheimer's with energy work is: ninacollart.com<br />Hope to see you again soon (We met once or twice at the Box Office!)<br />Best,<br />Nina CollartNinahttps://www.blogger.com/profile/14055670443226872224noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-21907844825778125662011-05-08T17:17:25.407-04:002011-05-08T17:17:25.407-04:00Hi Lisa
I have just finished "Still Alice&quo...Hi Lisa<br />I have just finished "Still Alice" and have just been given your second book for mothers day here in New Zealand!<br />As an Occupational Therapist, I have worked in both Neurology and Psychogeriatrics in the commuunity and have a love of the " Brain" and people who have been effected in some way from injury and disease.<br />I have worked with Neuropsycholgists and think they are fab.<br />What I have really enjoyed about your book is some insight into how the person is effected from their perspective. You have managed to cross a bridge between academic, health professional to speaking to the families/public in real everyday language and with functional examples of the journey with Alzehiemers. That truly is a gift!!!!<br />I am in awe of you and totally loved this book, it is on my "to read once a year list"!!! Thank you sooooo much.<br />Nic :-)Nicolahttps://www.blogger.com/profile/06424273331880784907noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-75053996805534585582010-05-24T08:24:00.783-04:002010-05-24T08:24:00.783-04:00I blogged about your book at www.aintiawriter.blog...I blogged about your book at www.aintiawriter.blogspot.com. Thanks for writing it.Tameri T.https://www.blogger.com/profile/16607894505990748200noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-2753199691610011732010-01-15T03:01:39.419-05:002010-01-15T03:01:39.419-05:00I just finished reading Still Alice for the second...I just finished reading Still Alice for the second time. I'll probably read it again and yet again.<br /> <br />At the very beginning of the year 2000, the company I worked for was in the midst of a huge restructuring. I'd been through plenty of reorganizations before, but this time was different. I was having great difficulty learning the new systems (Me -- who had taught myself the previous unfriendly mainframe system I used!). In addition, I was having occasional trouble finding words and frequent trouble with spelling errors. Even off the job I was having trouble. I later realized I stopped listening to the radio in the car about then because it was too distracting. Trips to Costco, with it's myriad of things and noises and lights, left me mentally exhausted. I chalked all this up to the stress at work, even though I was having a couple physical symptoms that didn't add up at all. I suspect I didn't want to think there was anything "real" wrong with me. <br /> <br />Finally, in the summer of 2000, I had a problem with my vision which eventually led to my having all sorts of neurological tests, and I learned my troubles were not, in fact, due to stress. At age 45, I was diagnosed with relapsing-remitting multiple sclerosis.<br /> <br />No, I don't have Alzheimer's Disease, but my particular version of MS causes me to share some symptoms with Alzheimer's patients. I have cognitive deficits. No longer can I mentally turn on a dime, or snatch just the right word out of the air or even spell the most familiar words correctly. I often can't remember that I've already said something, and I say it again. I forget things from one room to the next. I'm like Alice in too many ways for comfort. <br /> <br />I have multiple sclerosis, but I don't need a wheelchair or a cane or any other physically assistive device. I have a version of MS some of us mockingly call the "But You LOOK Fine" type. I read that line in Still Alice, and I think I probably know almost exactly how Alice felt when she heard it.<br /> <br />I resent having Multiple Sclerosis, but I admit I'm hugely relieved it is not as aggressively destructive a disease as Alzheimer's. Knock on wood. After all, there is no rule book that says just because I have MS I can't get another nightmare of a disease.<br /> <br />Thank you, Lisa Genova, for giving us Alice, who will always be still Alice somewhere, if only in our hearts and minds.Unknownhttps://www.blogger.com/profile/16923099650918179774noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-55883053909259595572010-01-10T15:27:20.105-05:002010-01-10T15:27:20.105-05:00Thanks, Lisa, for this book.
My husband was diag...Thanks, Lisa, for this book. <br /><br />My husband was diagnosed with mild cognitive impairment in '05, and last year, they started calling it Alzeimers. He has been on Aricept and Namenda nearly from the beginning. <br /><br />He is fortunately still able to take care of himself and drive to familiar places. <br /><br />But, I have lost my very best friend, as well as someone with whom to share memories of 50 years together. <br /><br />The good days are wonderful; the bad days pass. <br /><br />Your book gave me insight and comfort [and I haven't even finished it yet!], because I can understand better what is going on inside him, and the way he is dealing with it.<br /><br />Also, you have made me aware of possible resources and help. I'm going to ask our MD and neurologist about these at our next visits.<br /><br />Again, thank you for writing this book -- and writing it so well!<br /><br />Cheers,<br />NormaUnknownhttps://www.blogger.com/profile/13278697278088690493noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-46881956182795550352009-12-21T13:55:52.538-05:002009-12-21T13:55:52.538-05:00Hi Lisa,
I read Still Alice before blogging but i...Hi Lisa,<br /><br />I read Still Alice before blogging but it has helped me to deal with my father in a new way. It is a favourite of the year that I have recommended to many to read.<br /><br />Thanks for writing it and I look forward to all your new endeavours. <br /><br />I'm sure Starbucks loves you also, lol. It can be hard to choose between the love of your family time to reading also, well in your case writing and reading.<br /><br />http://teawithmarce.blogspot.com/2009/11/booking-through-thankful-thursday.htmlMarcehttps://www.blogger.com/profile/10136238772526246675noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-86736994168857600032009-12-21T08:52:39.992-05:002009-12-21T08:52:39.992-05:00Hi Lisa,
Our book club just finished reading Stil...Hi Lisa,<br /><br />Our book club just finished reading <em>Still Alice</em>. It was our favorite book of the year! Some of us have already read it twice. We're looking forward to reading <em>Left Neglected</em> as well. Thank you!Katehttps://www.blogger.com/profile/08340227057678810014noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-82456443311200387932009-08-25T15:11:31.767-04:002009-08-25T15:11:31.767-04:00Lisa,
I just finished Still Alice. I am deeply mo...Lisa,<br /><br />I just finished Still Alice. I am deeply moved. Thank you for creating this work, for sharing Alice and her journey with us. I am so glad I read it.Rebekah Williamshttps://www.blogger.com/profile/04971867235968673441noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-22513818789907839682009-06-23T16:33:22.377-04:002009-06-23T16:33:22.377-04:00Hi Lisa,
I finished Still Alice yesterday and I c...Hi Lisa, <br />I finished Still Alice yesterday and I cried so much towards the end. I dont have any family member diagnosed with this terribly fatal disease, but I found the book very touching and beautifully written. <br />I loved Alice and her family and I was so proud of her. I wish we can do more to people with Alzheimer's all over the world, your book added this disease to my list of To Dos... <br />By the way, I loved the butterfly and how it is printed on every page...brilliant piece.<br />ThanksGracehttps://www.blogger.com/profile/16438583405954528508noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-44156448938521515022009-06-06T06:57:34.839-04:002009-06-06T06:57:34.839-04:00I have recently begun to hink I have some form of ...I have recently begun to hink I have some form of hypomania....I am stimulated by being around people, upbeat music, etc... and begin to feel so energized I add more andmore to my schedule (I do not have depression. (I am 65 years old).<br /><br />In reading about bipolarism is seems like something that would fit in your aea of expretise. Do you have any suggestions of books to read, websites to go to etc... I feel like Alice in some ways and I wish someone would write a Still Donna book about my condition.<br />Thank you for responding, Lisa.<br />donnagchapman@yahoo.com<br />www.donnamo.blogspot.comNana Timehttps://www.blogger.com/profile/01560496536369749342noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-20896813395631917792009-06-01T02:22:20.848-04:002009-06-01T02:22:20.848-04:00Wow. Your book really has opened my eyes on Alzhei...Wow. Your book really has opened my eyes on Alzheimer's. It made me really think. My grandfather seems to be having symptoms of this and now that I've read this book it's making me wonder what if I don't get to see him before he forgets who I am? <br />Thank you so much for writing such an amazing book like this.brendafrieshttps://www.blogger.com/profile/09259071975613986165noreply@blogger.comtag:blogger.com,1999:blog-4122412036326078914.post-24102914865627775542009-05-31T03:57:53.111-04:002009-05-31T03:57:53.111-04:00Hi Lisa.
It's 12:37 AM. I just finished Still Ali...Hi Lisa.<br /><br />It's 12:37 AM. I just finished Still Alice on the heels of my husband going to bed 2 hours ago while leaving me with "goodnight" and "you are going to finish that book tonight aren't you?"<br /><br />Well yes, of course, and then after reading the interview at the end, instead of going to bed I was compelled to find your blog.<br /><br />Anyway. Alzheimer's ripped my vibrant and healthy and kind and insightful and incredible Dad away from me far far too early. He never knew his beautiful grandchildren. He thought my sister, who cared for him in her home towards the end was me, his eldest daughter...the one who left and moved to California from NY 10 years earlier.<br /><br />In any case, I am more aware because of you. More terrified for myself and my family because of you, and moved to not back burner this disease because of you. I am a nurse clinician (of Neurosurgery no less) for the past 20 years. A mother of two, and wife.<br /><br />Thank you for your beautifully written book. I know I will read it again and again. <br /><br />Right now, my only problem is, it's 12:54, I'm still awake and there are at least 6 people I have promised my book to.Unknownhttps://www.blogger.com/profile/07389557536421638111noreply@blogger.com